So, earlier this week we met with Gopilila's new doctor - Dr Richard Penson (http://www.massgeneral.org/cancer/care/adult/gyn/team_clinician.asp?id=192/) - a really easy going, friendly person and very straightforward. He told us that Gopilila's condition was erally beyond cure. However, he put her on this pill called "Tarceva" that has been used in similar conditions of metastasis - from female abdominal cancer to the lungs, but not specifically from cervical cancer to the lungs. He said that as things stand she had a few months at the most, but if the new drug worked for her it could potentially give her a few more months. Side effects of Tarceva are diarrhea, acne/rash on the face, some nausea ... Considering that we don't really have many choices, we readily accepted what he had to offer. She started taking the pill a few days ago.
In the meantime, she has also had a couple of rounds of acupuncture and a friend of a friend of Manjari Lila's came over yesterday and gave her some Reiki.
We had a wonderful visit from Malati Prabhu a few days ago and some devotees from the Boston temple stopped by for a visit too.
Monday, February 4, 2008
Saturday, January 26, 2008
Meeting with the doc
Yesterday, Gopilila and I met with her oncologist, Dr. Arlan Fuller (http://www.dfhcc.harvard.edu/membership/member-profile/member/688/0/) . He felt that there is no current treatment protocols that can address Gopilila's condition. He suggested stopping the chemo (because her cancer had grown through the first two rounds of chemo) and he did not suggest raditation. He felt that any intervention would cause more harm than good (she may lose the little reasonable health that she has). He felt that she had a few months left.... at the most.
We asked him about any experimental treatments that might be available. He referred us to his colleague, who we hope to meet next week, to see if she can qualify for a clinical trial on a biological agent (some kind of pill) that is being experimented on.
We asked him about any experimental treatments that might be available. He referred us to his colleague, who we hope to meet next week, to see if she can qualify for a clinical trial on a biological agent (some kind of pill) that is being experimented on.
Friday, January 18, 2008
out of the hospital
Gopilila got out of the hospital yesterday. She was glad to get back home and so were the kids and I. It snowed last night and she was out there playing in the snow and making a big snow ball. Today she played in the snow with Gopala and Vrinda. We are trying to appreciate her company and make the time we have together meaningful.
There seems to be an underlying sadness to everything that we are doing now - for Gopilila's folks and myself. I find myself getting edgy and more irritable than usual.
Gopi looks much better than when she went to the hospital. Then again, six pints of blood should make just about anyone look better.
The folks from the hospice came by today to give us some info about what they have to offer. according to the nurse, hospice services are usually offered to those who have six months or less left.
Seeing Gopilila's progressive illness makes me remember Kunti Prabhu's return to New Vrindavan and how she left so gloriously. It was quite magically. She was so immersed in Krishna consciousness. I am realizing that while getting entrance into Sri Krishna's pastimes is our goal, it is certainly not an easy feat.
There seems to be an underlying sadness to everything that we are doing now - for Gopilila's folks and myself. I find myself getting edgy and more irritable than usual.
Gopi looks much better than when she went to the hospital. Then again, six pints of blood should make just about anyone look better.
The folks from the hospice came by today to give us some info about what they have to offer. according to the nurse, hospice services are usually offered to those who have six months or less left.
Seeing Gopilila's progressive illness makes me remember Kunti Prabhu's return to New Vrindavan and how she left so gloriously. It was quite magically. She was so immersed in Krishna consciousness. I am realizing that while getting entrance into Sri Krishna's pastimes is our goal, it is certainly not an easy feat.
Wednesday, January 16, 2008
the razor's edge
Gopilila is still in the hospital. She has been in since Friday (Jan 11th). The doctors have not been able to figure out what has caused her fevers, which have been on and off for the last few days. They did find out that she was really anemic and so they have given her about 6 pints of blood. They have tried to get her other levels in order - potassium etc. They did a CT scan on her and what they found out is that her cancer has grown. Apparently two masses have grown and merged (become one!) and the cancer is growing into her ribs. Basically, the doctors have given up on any hope for her improvement. We will be meeting with her oncologist on monday to see what options are left, but the docs don't seem to think there are any. Western medicine has been able to help people in various conditions, but it seems that with regards to cancer, especially late stage (as in Gopilila's case), they don't seem to have much ideas as to what to do.
So, we are embarking on the remarkable path of trying to fight the disease (not give up hope) and yet prepare for the inevitable...
So, we are embarking on the remarkable path of trying to fight the disease (not give up hope) and yet prepare for the inevitable...
Friday, January 11, 2008
a time to wake up
So, Gopilila is back in the hospital. She finished her second week of treatment. She had four days of treatment starting Monday. Today, she was given a shot - neu laseter- to help her white blood count. This was given at the end of the last round of chemo, too. While we were at the hospital they noticed that she was running a fever - 102.9 and so the doctor suggested we take her to the hospital to see why she was running a fever. They wanted to be able to observe her. She will be in for a day or more depending on her condition.
I spoke with her doctor a couple of days ago. In plain words he said that he was not considering a cure, just to be able to try and control the disease and give her comfort with good pain relief. He said that she had a 50 % chance of improvement. He also mentioned that he has seen people in similar conditions have improvements in health. So, dear friends, please keep her in your prayers.
I spoke with her doctor a couple of days ago. In plain words he said that he was not considering a cure, just to be able to try and control the disease and give her comfort with good pain relief. He said that she had a 50 % chance of improvement. He also mentioned that he has seen people in similar conditions have improvements in health. So, dear friends, please keep her in your prayers.
Wednesday, January 2, 2008
the two krishnas
We were blessed with a visit from the two Krishnas (Krishna Balaram and his sister Krishna Priya) a couple of days ago. The drove down from New York. It was so wonderful seeing them. It has been at least a couple of years.
Gopilila's condition has been more or less the same. She throws up if she doesn't take her nausea meds (this we were warned is a side effect of the chemo) and she is still in a lot of pain. She does not have much of an appetitie either. She starts her next round of chemo on the 7th of this month.
Hope that y'all, you'ns, yous have a wonderful new year ahead.
Hare Krishna!
Gopilila's condition has been more or less the same. She throws up if she doesn't take her nausea meds (this we were warned is a side effect of the chemo) and she is still in a lot of pain. She does not have much of an appetitie either. She starts her next round of chemo on the 7th of this month.
Hope that y'all, you'ns, yous have a wonderful new year ahead.
Hare Krishna!
Tuesday, December 25, 2007
morph in
So, Gopilila is on a new painkiller - morphine. She was on 15mg(one pill) twice a day. But, by the time she took her second pill the first one was wearing out and she was in pain. So, the doctors have doubled her dose and asked her to take it every 8 hours (2 pills three times a day). This has helped significantly with the pain. Otherwise, it was so uncomfortable for her when the meds were wearing out. However, one of the side effects of the meds is constipation. So, more meds equals more...
We had house visits by the nurse a couple of times. The first one who came in was concerned that the pain levels were not under control and spoke to the doc who then revised the dosage. Even though the docs have suggested that she take two pills three times a day, Gopilila takes only one three times . She does not really like being drugged out. Once she remarked that if anyone asked her how she was she should just say that she's high.
We had house visits by the nurse a couple of times. The first one who came in was concerned that the pain levels were not under control and spoke to the doc who then revised the dosage. Even though the docs have suggested that she take two pills three times a day, Gopilila takes only one three times . She does not really like being drugged out. Once she remarked that if anyone asked her how she was she should just say that she's high.
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